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Thank You

Thank you to all who helped us with our medical expenses.

We will always remember your kindness.

Sincerely,

The Hausfelds

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3D Animation
2D Animation
Architecture Visualization
Character Animation
Animated Commercial
Product Modelling
Animated Presentation
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Animated Movies

Looking forward to start cooperation with you soon.

Thanks,
Roy
Email: donghuacon@tom.com

more Lyme losses

ALL of our Lyme losses continue….our savings being reduced to chaff….we re-financed our home and farm in 2007. Because of medical bills and the times we were just too sick to deal with them, our credit made us unable to get a “great” rate…. 6.875. A $4000.00 mortgage. We planned to stay just until our youngest graduated from high school, in June 2009. But as we all know, in the interim, in 2008, along came an economic, social, healthcare, constitutional rights, international and about every other wise disaster…..named Obama. Immediately the stocks plummeted, as did house prices, and then energy prices, as Obama had earlier predicted
“necessarily skyrocketed.” From where we were in Lovettsville, everything was a “haul” and our house sits atop a hill in between Furnace Mountain and Short Hill Mountain. Not only cold, but windy, with a non-insulated house…We were getting $600/month gas bills to heat only the bottom floor of our house. Since all products are either flown or trucked in, aside from buying local tomatoes, the price of everything began to rise. We often talked about people who were budgeted to the penny, teetering on the edge…what could they do? We never dreamed, even as we slid closer and closer to our own edge, that losing our home and our farm would become a reality for us while Obama was still somehow president.

Tim was making good money but we were, by now, budgeted to the teeth, with the big house & farm, animals, two kids in their 20s still dependent on us, and a granddaughter we were buying almost everything for, as I kept her almost all the time, (and loved doing it,) even tho it stressed my energy level….my “spoons” past their limit. Then when contracts ended, he would already have another job, but with terrible inflation (double-digits, no matter what they tell you,) we experienced a very real decrease in real income every single month.

Then came something called “sequestration” which meant an across the board cut to contractors working for the federal govt. It did not hit us til this year, when Tim, a program manager, was laid off. Twice. First b/c his contract was federalized AND they never hire management from outside. During this time we discovered my father was very ill, and unfortunately, had inoperable pancreatic cancer. Sitting by his bedside with Mom every day was a little like dying a little bit every day. I stayed with Mom, at her house, and Tim came to stay when he could. I never cried in front of Daddy but other than that I cried all the time.

I thought it might be easier when he was finally not in so much pain, but it wasn’t. He came home to the house on 8/6, and 36 hours later, at 3 am on 8/8/14, I found him, right after he moved to heaven. I was sleeping on the sofa on one side of him and mom was sleeping on a recliner on the other side. I don’t remember a thing from the next couple of days, after finding him. My eldest daughter, very very close to him, flew in from Greece, barely missing him, heartbreakingly. She was with us for almost a month, til the beginning of September. I still couldn’t leave my mother for long, and when back in Lovettsville one night, had a very bad emotional beatdown from the boyfriend of my child, less than two weeks after Daddy died, and came back to Mom’s right away, this time for good. I would not live with that boy in the house, but knew if we kicked him out our daughter would leave too…taking Sophie with her. Sophie’s father decided I was unstable (crying a lot, having lost my father, besides being a late stage Lymie and all the rest. I was also unreliable since I went to sit by Dad’s side as he lay dying. Sophie’s mother, my daughter, was neither working nor attending college at that time, when Daddy was dying, so I did not feel I was being “unreliable”. I thought I was being where I needed to be. It killed me, just exploded my heart to have Sophie taken away from me and put in “daycare”. Not a preschool part-time experience which I supported and meant to find her that summer….but more on the “daycare” later…that’s another story.

Then again just weeks later, Tim was laid off again. The job had been a nightmare from the start. My husband was the program manager and was supposed to start with 27 people working for him. He started with 3 and ws expected to meet the very same standards AND hire the rest of the staff, highly technically skilled and already cleared,…..NOBODY could have done that job. In the end, it was the FBI who was clueless, and stupid, and wanted to blame Tim. Kong was the company that let them. The did not force the issue with the subcontractor who was supposed to provide the other key personnel. They let Tim be their “fall guy”. And when a sick family is dependent on one income (thank you, Lyme) and that income goes, a LOT of loss is inevitable. I knew then (three days before my birthday and on the anniversary of having lost our first, wonderful Newfie, Gabriel) that that was it. That time of the year people are already looking to the Holidays, especially Feds who hire companies to be contractors. It would be at least January before a new job could start and probably longer. A sinking feeling.

We did get our mortgage co. to agree to a 3-month-forbearance, where we paid something but not the full amount. We were supposed to start 3-1-15 paying $5K a month for 6 months to “catch up” but I can’t imagine in what world that would happen seeing as how $4K pushed us to the wall even WITH a job, and he had no job. It also became very clear it was going to take a long time to find a job, and it would be at tens of thousands of dollars less than what he had been making. So, we came to the slow and painful realization that we are going to lose the house and farm, everything we’d both worked our whole lives for. We’d be starting over, at 52 and 54. I didn’t want to believe it, mostly because of my animals. The house is just a house. I had long wanted a smaller house; ours was just too much for me and had been for a long while. I will horribly miss the animals I’m being forced to give up. It will shred my heart. I will miss the land, and I have plants/small trees that have been in my family for 4 generations, which I WILL get in there and dig up, sometime in later March or hopefully maybe April. We are going to short-sale the house, as it’s now worth 1/2 of what it was, and a member of our extended family is handling it.

But today was the first, horribly painful step. We had to put our 10-year-old two Great Pyrenees girls into GP Rescue. I have a friend who loved their sibling Blanca her whole life and now works in GP Rescue. She’s going to babysit them and their case for me. These are the last of the puppies left, the last of a wonderful line. They were groomed today and went to a foster home with indoor warmth (it’s 1 degree F) and outside access. They were very friendly and the lady who picked them up said she drove to the groomer with one big white head on one side of her head and the other girls’ big head on the other; they were very sweet and friendly. My heart feels like it’s tearing out of my chest; these puppies were born into my hands, working with their mother, my sweet “Smiling Samantha.” Preemies. 17 of them. I had to feed formula to one half of them while Mama Samantha nursed the other half, and switch every two hours. But that’s another story, for another time. For now….today is the end of an era. I would have never believed I’d have given them up, but sometimes Life, esp. Life with Lyme, leaves you no choice. Goodbye, my sweet, sweet girls.

Annonymous Lyme Question .what causes the crawling feeling…like biting all over the body in treating lyme?..is it die off and the lyme being killed? .I’m in 7th month of treatment at the beginning I had it bad then it went away for a few months then they increased my antobotics and it came back mainly at night..i wondered if it is candia..but have been on nystin and probotics so not sure LH

I don’t know. Good Question NY
LikeBug bites TR

It’s neurological
Ms people get it too
But in our case infections cause it
I guess in neurons NY
Which bug is the culprit???

LYMIES CALL IT PUNCHES PULLS , I CALL IT TWITCHES, PAST 10 YEARS SINCE GETTING LYMES AGAIN 04 ,06 08 10 2 TIMES 11 2TIMES 12,ONCE 13 ….WHAT WE LEARNED BACK EARLY 90S ITS THE SIROCHETES ON NERVES ETC..BOTTOM LINE ALL MY LYMIES TOO IN GROUPS SAY ITS JUST A SIGHN THEY ARE STILL IN YOU….I HAVE THEM RIGHT NOW ALL OVER . SOME DAYS GONE ,I AM ON 2 ANTIBIOS RIGHT NOW ONE IS NEW,,,,GTS GS

I did two searches who knows.http://www.mdjunction.com/…/3207018-bugs-crawling-on-skin CK

Bugs Crawling on Skin
http://www.mdjunction.com
Bugs Crawling on Skin: I’m sure that this has been discussed before, but I am wondering… For those of you that experience the sensation of things

2nd search. http://www.medhelp.org/…/Crawling–itching…/show/1285420

Crawling/ itching feeling under skin – Rare Diseases – MedHelp
http://www.medhelp.org
Please help me.. I have started feeling like there is something crawling under m…See More

I’ve had it all last 6 days to 2 weeks all just getting worse TR
http://m.youtube.com/watch?v=e3A8_6JeKoo&feature=youtu.be RB

Lyme Disease or Oral Spirochetosis
A husband, wife and their child is diagnosed with Lyme disease. The all had oral…See More

Maybe morgellons parasites AG
This is the best pic of spiros fast forward to see or listen to the whole video RB

Could be neuropathy, which causes some weird sensations like that MBC

Morgellons? HW

This condition is formication. Causes of formication include normal states such as onset of menopause (i.e. hormone withdrawal). Other causes are medical conditions such as pesticide exposure,[3] mercury poisoning, diabetic neuropathy, skin cancer, syphilis, Lyme disease or herpes zoster.[2] Formication can also be a result of alcohol withdrawal in alcoholics, along with delirium tremens, and is often accompanied by visual hallucinations of insects.[2] http://en.wikipedia.org/wiki/Formication LH

Formication – Wikipedia, the free encyclopedia
en.wikipedia.org
Formication is the medical term for a sensation that exactly resembles that of s…See More

CNS inflammation does that. NB

LIAS THE LONGER YOUR ON ANTIBIOS GETTING DEEP INTO TISUES THEY DIE OFF ,IF ITS MUSCLES SOMWHAT TAKE MAGNESIUM CALCIUM COMBINBINED. I ASKED THE QUESTION IN LYMES GROUP DULUTH OF MOSTLY LATE STAGE LYMES I SAID ANY OF YOU HAVE TWITCHES ALL OVER.THEY ALL YELLED PUNCHES PULLS.KILL BACTERIA THEY GO…………………..INFRARED SAINAS THE BEST AND HOT TUBING 106 20 MINUTES KILL SOME HEAT SENSITIVE SPIROS…GTS I HAVE NEURAPATHY 15 YEARS NOW ITS NOT THE SAME. GS
It’s my understanding it’s a CNS reaction from the pathogens. I had it horrible and with 4.5 years of treating so far it did go away. KC

From my experience, it’s typically a sign of Toxicity.

Remember that your Skin is the bodies largest organ and so it will use it as other organs to detox through. So… The quickest way to achieve relief from “creepy crawly” skin is to detox it.

Dry Skin Brushing and some form of sweating (my preference is the Infrared Sauna) will bring tremendous relief AT

Morgs KS

I suffered with this for years before I got lyme. I cant say about any of the comments above, but what I had. it was the creepy crawly legs and sometimes arms. only or ususally happens when u are settling down for the day. as u are lying still in bed, then u feel it coming. u have to move ur legs or scream…. boy do I relate. if ths sounds familiar. u may just have restless legs. very common and millions of folks suffer from it. it will take a prescription, but it is totally controllable or I would still be screaming. I have lyme too. this on top of lyme, omgoodness. not good at all. I take merapex, also sentment and there is a new drug out. just tell ur doc the symptoms and ask about restless legs. he will know the right drug depending on what else u are taking. after that, my legs may start to jerk and feel crawly, but only till I can take my Mirapex. hope this helps. because we have lyme, we think ever single thing that goes wrong with us, we think oh my, its got to be co infections or tons of other things, when its really something simple. however I will say, most of the time, it IS related to lyme, and that whole saga is way over all our heads unfortunately. RF

MS PEOPLE’S are NO DIFFERENT ONLY WORSE IN MY PERSONAL OPINION IN A MAJOR WAY AND ONE GOOD REASON – US MS’ers DONT HAVE A ANOTHER DISEASE ITS ANOTHER CONDITION of the DESTROYING OF THE MYLEIN SHEATH COVERING OUR NERVE FIBERS AND THE BARTONELLA AND LYME AND MYCOPLASMAS BABS SHINGLES HHV-6 EBV CMV CMS STREPTOCOCCUS B CLAMIDHIAE PNEUMONIA AND MYCOPLASMA PNEUMONIA…. POST MENOPAUSAL symptoms SINCE 28 PAST 6 YRS etc…. MAJOR THYROID ADRENAL LYMPHATIC ISSUES AND GUT AND CANDIDA SO ALL THOSE PLACES THE MYELIN IS DESTROYED IT THEN CREATES A LEISION FROM WHICHEVER ONE OF THESE PARAISTIC BACTERIAL OR VIRAL INFECTIONS or all to be cause creates the CONDITION to be DX with MS-(not always from Lyme etc… -majority) MS-MULTIPLE SCLEROSIS…. “MULTIPLE MEANS MANY” “SCLEROSIS MEANS SCARRING OF CELL,BODY, OR PART, TISSUE….. SO FOURTH and disabilty acknowledges that this unknown! VERY UNEXPLAINABLY NEUROLOGICALLY caused CONDITION IS NOTHING ANYONE WITHOUT IT CLD EVEN IMAGINE BC WITH SEVERE NEUROLOGICAL INVOLVEMENT SOME BEING PERMANENTLY DAMAGED AREAS…. Its even MORE HORRIFIC than our horrific days all together -metaphorically speaking! sorry totally didn’t mean to come off snotty at all here just read the reference to what MS was not so I felt compelled to share what it actually means! Its a BIG PHARMA type society with top exec making millions a year…. Knowing about what we are really going through but honestly not many who got the nack for really getting someone better the better way…. ” We teach each other to seek out the other”…. ~me CS

When I had this symptom it felt like a ant farm was crawling under my skin. It wasn’t painful but annoying amd strange. KC

I was just complaining to the LLMD about this today! He didn’t specifically tell me what it was from though….maybe because it isn’t that simple. He did give me something for candida just incase but he also is doing more bloodwork. CO

SERIOUSLY GUYS just ask about restless legs. cant hurt to ask right RF

If you’re taking niacin, you may be flushing. Happens to me almost everyday. JC

I have had this every since Lyme. I blame it on small bugs and no see’ems but I really think it is Lyme or result there of. Now, my doc also told me that candida and yeast can cause skin to itch. I know that sometimes it can also make skin crawling. But I have heard that Lyme can cause this from the nerves. All I know, I have watched my arm crawl and feel like a bug. I will get the flash light and my little hairs on my arm will be moving and I can’t see any bug just my hair moving by itself. After it stops, the feeling goes away. I have had times of skin stinging just like something piecing my skin. All these symptoms I never had before Lyme. It is frustrating. MA
So M you think its the b lyme? AG

I have been diagnosed with restless leg syndrome, but I feel the skin crawling feeling on my arms and back too. CO

All I am saying I never had this problem until I had Lyme. Maybe our immune system works different now or is over stimulated I don’t know. But the skin crawling, bugs crawling,stinging feeling seems to be symptoms associated with Lyme in some way. My doc said that Lyme can effect the nerves. I am still open to any ideas. .MA

mold toxins, such as that from stachybotrys can cause this KB

Seems like many say morgellins parasitee AG

Well, anything is possible. But for me It comes and goes. Just like Lyme does. It can bother me hard for a period then it will get better and then return later. So strange. MA

Please watch the video so you will know whats going on inside u you can see the spiros spinning moving tell me that wont cause sensation RB

It’s SO unbelievable my friend AG

Night is when they are most active RB

Yes AG

I believe it’s bugs crawling & screwing up our nerves. CM
I had the issue & at the same time, My nerves were not working properly .
I was twitching & felt those creepy crawlers. Frigging bugs.
When we kill them, we hurt . The bugs release a toxin & cause Fibro . Pain everywhere.
My opinion.
Not easy , alm we go thru!
But gang in there. It does get better CM

I think it’s parasitic do agree with Renee Bodkin. Recently heard it has something to do with thyroid/adrenal. Unfortunately what and where I heard it… Can’t remember due to brain fog. If I remember will let you know. MB

Love this cell, not easy, But we all seem to go thru this CM
Hang in There. It does get better CM

I think if it were nerve issues , one would feel it a majority of the day or night this seems to come alive for me at night and not every night… MB

Also in my 7th month on Abx. Creepy crawling from 10 PM til 06 AM. I believe the bugs are triggered by hormones. When your inner clock says bedtime their inner clock says wake up. Same goes with stress hormones. The disease picks up speed when we are stressed out. So when the bugs get active and find themselves surrouded by Abx the war starts. I totally agree with C HW.

I took a parsite drug for three days and it got v v bad at night did try antihistamine thought that helped ET

mine starts at night or when I am sleeping at night. If I nap during day I have no trouble. so strange…MA

http://m.youtube.com/watch?v=wZv4GUeKuPI RB

Electromagnetic frequencies stun spirochete bacteria
Video brought to by http://www.lymebook.com/courtesy of Dr. William Nordquist, …See More

Review parasite activity they are always active at night full moon makes it worse RB

I had this a lot in the past then it stopped. Now back the last week also tiny cuts. JF

Morgellons – rife helps KR

What frequencies ru using K ? JF

Hot shower then cold shower TR
Then good homemade cream
Works wonders …See More

Homemade cream T ? JF

I think it’s neurological, part of the herd/die-off. But I feel like I’m crawling out of my skin! KH

Coping Advice
Home > Coping Resources > Coping Advice > Letter to Normals

Letter To Normals: Getting Others To See Your Symptoms
by Ricky Buchanan *

These are the things that I would like you to understand about me before you judge me …

Please understand that being sick doesn’t mean I’m not still a human being. I have to spend most of my day flat on my back in bed, and I might not seem like great company, but I’m still me stuck inside this body. I still worry about school and work and my family and friends, and most of the time I’d still like to hear you talk about yours too.

Please understand the difference between “happy” and “healthy.” When you’ve got the flu, you probably feel miserable with it, but I’ve been sick for years. I can’t be miserable all the time, in fact I work hard at not being miserable. So if you’re talking to me and I sound happy, it means I’m happy. That’s all. I may be tired. I may be in pain. I may be sicker than ever. Please, don’t say, “Oh, you’re sounding better!” I am not sounding better, I am sounding happy. If you want to comment on that, you’re welcome.

Please understand that being able to stand up for five minutes doesn’t necessarily mean that I can stand up for ten minutes, or an hour. It’s quite likely that doing that five minutes has exhausted my resources and I’ll need to recover. Imagine an athlete after a race. They couldn’t repeat that feat right away either. With a lot of diseases you’re either paralyzed or you can move. With this one it gets more confusing.

Please repeat the above paragraph substituting, “sitting up,” “walking,” “thinking,” “being sociable” and so on … it applies to everything. That’s what a fatigue-based illness does to you.

Please understand that chronic illnesses are variable. It’s quite possible (for me it’s common) that one day I am able to walk to the park and back, while the next day I’ll have trouble getting to the kitchen. Please don’t attack me when I’m ill by saying, “But you did it before!” If you want me to do something, ask if I can and I’ll tell you. In a similar vein, I may need to cancel an invitation at the last minute. If this happens, please don’t take it personally.

Please understand that “getting out and doing things” does not make me feel better, and can often make me seriously worse. Fibromyalgia may cause secondary depression (wouldn’t you get depressed if you were stuck in bed for years on end!?) but it is not caused by depression. Telling me that I need some fresh air and exercise is not appreciated and not correct — if I could do it, I would.

Please understand that if I say I have to sit down / lie down / take these pills now, that I do have to do it right now — it can’t be put off or forgotten just because I’m doing something. Fibromyalgia does not forgive.

Please understand that I can’t spend all of my energy trying to get well. With a short-term illness like the flu, you can afford to put life on hold for a week or two while you get well. But part of having a chronic illness is coming to the realization that you have to spend some energy on having a life now. This doesn’t mean I’m not trying to get better. It doesn’t mean I’ve given up. It’s just how life is when you’re dealing with a chronic illness.

If you want to suggest a cure to me, please don’t. It’s not because I don’t appreciate the thought, and it’s not because I don’t want to get well. It’s because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Fibro then we’d know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Fibro. If something worked, we would KNOW.

If after reading that you still want to suggest a cure, then do it, preferably in writing, but don’t expect me to rush out and try it. If I haven’t had it suggested before, I’ll take what you said and discuss it with my doctor.

Please understand that getting better from an illness like this can be very slow. People with Fibro have so many systems in their bodies out of equilibrium, and functioning wrongly, that it may take a long time to sort everything out.

I depend on you — people who are not sick — for many things.

But most importantly, I need you to understand me.

(I did not write this and am not sure who did, but it’s great!)

What is Lyme Disease? Lyme Disease Information

Plea for Work from Karen and Tim

lisah April 15, 2014 Fundraisers

From: Karen Elizabeth Hausfeld

Tim’s contract is ending, and the powers that be have laid him off effective May 15. He thought he had 9 months to find a job; now it tuns outThey have hired a proposal writer as a transition manager to transition his 50 employees so the government (they’re under a mandate) so we’re under a real problem, a hard and fast deadline. We lose our income (it’s all him…) and our medical, life insurance, etc.

I am asking for your help….I’m asking for you to reach out to anyone you know, whether they work for government or contractor or other company, for anything they know available. He has extensive managerial experience, a wonderful resume, and specializes in IT security, other types of IT issues, computers & telecom (has a Master’s in that, and a Bachelors in Electrical/Electronic Engineering) and of course he has that rare combination of technical expertise and ability to work well with people. About the only thing he couldn’t do is write code. One of his early managers said “There’s nothing that Tim couldn’t do!!”

We need help. Our medical is so expensive and we’re burdened with a $3900 mortgage and a car pmt. Two car pmts til Aug. Those are our 2 reliable cars. We have 2 other very old cars worth nothing, which we use when the others are in the shop. There are 4 of us depending on him: Kelley, Sophie, Tim and me (and often Tony.) I am willing to discontinue my treatment for as long as it takes, but that mortgage, car pmts, gasoline and food add up and they are. We can once again cash out his 401K but there’s a huge tax penalty paid up front, and it’s under 10K b/c we were just able to start again 2 yrs ago, AFTER we went thru losing it and everything else to get out from under debt.

Anything you can send our way will be very much appreciated! BTW, he is a US veteran if that helps at all.

Thanks so much, Karen & Tim

If you are interested in donating to help Karen and Tim through this rough patch please donate at paypal account khausfeld@lucketts.net

Coping Advice

 

Letter To Normals: Getting Others To See Your Symptoms

by Ricky Buchanan *

These are the things that I would like you to understand about me before you judge me …

Please understand that being sick doesn’t mean I’m not still a human being. I have to spend most of my day flat on my back in bed, and I might not seem like great company, but I’m still me stuck inside this body. I still worry about school and work and my family and friends, and most of the time I’d still like to hear you talk about yours too.

Please understand the difference between “happy” and “healthy.” When you’ve got the flu, you probably feel miserable with it, but I’ve been sick for years. I can’t be miserable all the time, in fact I work hard at not being miserable. So if you’re talking to me and I sound happy, it means I’m happy. That’s all. I may be tired. I may be in pain. I may be sicker than ever. Please, don’t say, “Oh, you’re sounding better!” I am not sounding better, I am sounding happy. If you want to comment on that, you’re welcome.

Please understand that being able to stand up for five minutes doesn’t necessarily mean that I can stand up for ten minutes, or an hour. It’s quite likely that doing that five minutes has exhausted my resources and I’ll need to recover. Imagine an athlete after a race. They couldn’t repeat that feat right away either. With a lot of diseases you’re either paralyzed or you can move. With this one it gets more confusing.

Please repeat the above paragraph substituting, “sitting up,” “walking,” “thinking,” “being sociable” and so on … it applies to everything. That’s what a fatigue-based illness does to you.

Please understand that chronic illnesses are variable. It’s quite possible (for me it’s common) that one day I am able to walk to the park and back, while the next day I’ll have trouble getting to the kitchen. Please don’t attack me when I’m ill by saying, “But you did it before!” If you want me to do something, ask if I can and I’ll tell you. In a similar vein, I may need to cancel an invitation at the last minute. If this happens, please don’t take it personally.

Please understand that “getting out and doing things” does not make me feel better, and can often make me seriously worse. Fibromyalgia <Lyme, Lupus, etc.> may cause secondary depression (wouldn’t you get depressed if you were stuck in bed for years on end!?) but it is not caused by depression. Telling me that I need some fresh air and exercise is not appreciated and not correct — if I could do it, I would.

Please understand that if I say I have to sit down / lie down / take these pills now, that I do have to do it right now — it can’t be put off or forgotten just because I’m doing something. Fibromyalgia/Lyme/Lupus etc. do not forgive.

Please understand that I can’t spend all of my energy trying to get well. With a short-term illness like the flu, you can afford to put life on hold for a week or two while you get well. But part of having a chronic illness is coming to the realization that you have to spend some energy on having a life now. This doesn’t mean I’m not trying to get better. It doesn’t mean I’ve given up. It’s just how life is when you’re dealing with a chronic illness.

If you want to suggest a cure to me, please don’t. It’s not because I don’t appreciate the thought, and it’s not because I don’t want to get well. It’s because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Fibro then we’d know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Fibro. If something worked, we would KNOW.

If after reading that you still want to suggest a cure, then do it, preferably in writing, but don’t expect me to rush out and try it. If I haven’t had it suggested before, I’ll take what you said and discuss it with my doctor.

Please understand that getting better from an illness like this can be very slow. People with Fibro have so many systems in their bodies out of equilibrium, and functioning wrongly, that it may take a long time to sort everything out.

I depend on you — people who are not sick — for many things.

But most importantly, I need you to understand me.

 (I did not write this……  But it’s great! …..Karen)

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